Kierra was feeling so well this week. Totally off oxygen for about 4 days!!! And yesterday, she had a ‘perfect’ day! 🙂
Today her oxygen levels kept dropping again and she slept for hours.
The worst thing is that her nephrodic syndrome seems to be flaring up again. She gained about 2 lb. since Monday 😦 She has barely had any urine output since last night. Not a good sign. So tomorrow morning, we go see the good Dr. S. first thing in the morning. Maybe she is catching a bug. Or maybe it’s her kidney’s having issues again. Or maybe she’ll be just fine by the morning.
So would you pray for her? 
We have been planning to travel to Montana for Thanksgiving, leaving next week, and seeing family and friends we haven’t seen since we left, not to mention, sorting through the little, large pile of mis. stuff we stored out there.
Trusting God…and hoping and praying our little girl will start peeing again! (amazing what we mommies pray for 🙂 !!
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Published by Anita Hochstetler
I'm a country girl at heart who loves coffee shops and bookstores, simplicity and the great Big Wonderful World...particularly Northwestern Montana and it's familiar spots and untamed beauty. It is where I fell in love with my husband Stephen. We brought three children into this world in the following years.
Stephen is quiet and steady and crazy all in one handsome combo. He’s got an amazing brain and keeps my flights of fancy from blowing us away.
Kierra , our Wildflower child, was diagnosed with NCS before she was a year old. It is an extremely rare genetic disorder with no cure. She passed away in January of 2014 at 3 1/2 years old.
Kobe joined us 15 months after his sister and is our sensitive, math whiz child. He is kindhearted and loves the finer things of life. He talks about Kierra often and longs to play with her again.
Kyrell is our youngest. Our Hope child. He charges through life with a dynamic spirit and lots of smiles.
I share my heart here on these pages and pray they will bless souls far and near.
View all posts by Anita Hochstetler
Wildflower Muse 
Oh, Anita! We’ll be praying here…. I’m thrilled to hear she was off oxygen so long, what a blessing! But oh, how I hope she is not getting sick. I want so badly for you to be able to go to Montana next week (not that I want you to go away, of course… I just know how wonderful it would be for you to connect with people and sort out stuff). Please holler if you need anything.
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will definitely pray
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Oh, so sorry! Yes, we will pray…she has a Heavenly Father who loves her so incredibly much. Praying that you will feel that love too, and have wisdom to know about going to MT. I will pray specifically that she will pee…pretty sure God likes when we mommies get real with our prayers. 🙂 The pictures with her little doctor are too precious!
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